Developed skills and lines of research

Paola Mosconi graduated in Biological Sciences, specializing in the Health field, and since 1982 has been a researcher at the Mario Negri Institute for Pharmacological Research. Since 2005, she has led the Laboratory for Citizen Engagement in Health Research. Her work involves various aspects related to the organization and coordination of activities among people with different skills and competencies. This includes personnel management and administrative responsibilities. For cystic fibrosis, she organized a citizens’ jury to contribute to an important health policy decision: whether or not to offer carrier screening for cystic fibrosis.

Projects funded by FFC Ricerca as Principal Investigator or as Research Manager

FFC#22/2013
Citizens’ jury and decision making on cystic fibrosis carrier screening: to screen or not to screen?

FFC#9/2011
Cystic fibrosis: to screen or not to screen? Involving citizens’ jury in decision on carrier screening

Publications from FFC Research projects

Mosconi P, Castellani C, Villani W, et al. Cystic fibrosis: to screen or not to screen? Involving a Citizens’ jury in decisions on screening carrier. Health Expect, 2015 Dec;18(6):1956-67. doi: 10.1111/hex.12261. Epub 2014 Sep 9.

Mosconi P, Colombo C, Roberto A, et al. Deciding on cystic fibrosis carrier screening: three citizens’ juries and an online survey. Eur J Public Health. 2018 Oct 1;28(5):973-977. doi: 10.1093/eurpub/cky032.